The results are in.
EEG shows that her PDA has closed. She still has a possible PFO or ASD (not sure which at this point) and that her VSD is still open. Her VSD is moderate in size and could possibly require surgery to repair. This will not happen for quite a while, probably not even this year. She will need to be monitored carefully to make sure there are no complications from these. I'll know more after we actually speak with the cardiologist.
All the tests for infections have again come up negative. She has had fewer desats since yesterday afternoon and when she does desat she comes back on her own.
Her chest x-ray showed a change from last week. She is beginning to develop chronic lung disease or BPD as it is now known. There is some fluid backing up into her lungs. This could be the culprit of all the desats. Her chest still sounds fairly clear when listened to, but x-rays show otherwise. They have started her on albuterol treatments to try to get her lungs to open up and will do more x-rays to see if it was beneficial or not. This is not too serious. We will most likely have to perform breathing treatments once she is home for the first few years and be extra cautious during RSV (cold and flu) season. Or so they say....
She has gone up on her feeds to 4ml/hr. And seems like she is always hungry. Today she was eating everything she could get her hands on including her hands. I was also able to hold her today. The nurses said it would be ok, since she is showing that she likes to be touched and fussed over. We tried it and she tolerated it very well. Her stats stayed very high pretty much the whole time.
1 comment:
Hello-my name is Debbie-I am a former co-worker and good friend of Jeanne J. in Harrisonburg, VA. Jeanne shared your blog address with me so that I could see the pics of her beautiful niece, Madison. I wanted you to know that my niece, Afton Belle was born 13 weeks early in Okinawa Japan - it was so hard because we were so far away-just as it is difficult for Jeanne and George. She weighed 1 lb. 8 oz. and had to fight like crazy to make it! We couldn't see her and we didn't have blogs to keep everyone up to date. This is just terrific. I also wanted to share that Afton is now 14 years old, 5'8" tall and EXTREMELY healthy. She plays in her high school marching band and is the star of her soccer team -- so hang in there. I'm confident that your girl will be just as healthy and special as my "Afty" is. She had no permanent damages to her body at all and was a fighter just like your Maddie. I wish you all the best of luck throuh the ups and downs of early life with a preemie....it will make everything all the sweeter. Take care and I will continue to pray for all of you! Sincerely, Debbie
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