
Hi Everyone,
I wanted to let you all know that we are now home again. We actually came home on the 27th, but seeing as the stay was short lived last time I did not update right away. JIC.
Well, so far so good. Maddie is doing awesome. She has gained weight and is now 4lbs 14oz 16.5 in long! She has had no episodes and her monitor has not been alarming. We visited her pediatrician the other day and everything checks out. We also went to the eye doctor and her eyes are improving. Yeah!
Thank you for all your prayers and support, please keep praying that things continue to go well. She is so susceptible to infection and will be for the next year or so. Even a common cold could send us back to Kosair.
Thank you and have a happy 4th of July!